Dexcom

Having a continuous glucose monitor (CGM) has been life changing. I went from testing my blood sugar every few minutes to just having to open my phone and make sure I was in range.

The FDA recently approved the Dexcom G6. “Breaking News: The FDA has just announced the approval of the Dexcom G6 continuous glucose monitor. The highlights: NO calibrations, 10-day wear, integration with compatible devices” (@beyondtype1daily).  This new CGM is going to be an amazing change for T1D’s. I am sure we are going to have to check our blood sugar every once in a while but it won’t be as often which is fantastic.

I am currently on the Dexcom G5 where I have to calibrate it every 12 hours and change it every 7 days. It is going to be a weird transformation that will take a while to adjust to but I think that in the end it is going to be incredible.

dexcom G6
The Dexcom G6.

 

Symptoms of a Diabetic Low

Being low is the worst feeling in the world. I will be fine one second then I blink and I will be feeling horrible.

Symptoms of a diabetic low blood sugar include: sweating and shaking, blurry vision, poor coordination, dizziness or feeling lightheaded, difficulty concentrating, feeling anxious or irritable, hunger or nausea, and erratic changes in behavior.

In school, I will have to talk to my teacher, get a friend to walk with me to the nurse, then sit there for 15 minutes drinking a juice box until my sugar comes back up. I miss class, but my teachers understand and my friends help me get caught up.

If anyone knows a diabetic and realizes that they may be acting differently out of nowhere please ask them to check their blood sugar. They could be dangerously low and not know it.

Jess

Welcome Back!

Today I want to share my story with Jess. I met Jess through a program called Snail Mail, its through Beyond Type 1. We got matched up and I am so glad that we did.

Jess and I have been through it all together even though we live 3,254 miles apart. We text each other whenever we need to vent or just share a laugh. We have never met in person but she is my best friend.

Next Spring, my mom and I are traveling to England over Spring Break. We will be staying in her town for a couple days and then heading down to London. We are finally going to be breaking the distance after two long years.

Snail Mail has given us the opportunity to try different things from each others countries. We send each other packages (or “parcels” as she says 🙂 haha I love it) of candy, pictures and so much more.

I cannot wait to meet Jess and compare how we manage our diabetes!!

Our Letters
A letter that Jess sent me.

All About Me

My name is Meghan Penske. I am almost 15 years old. Six years ago, when I was 8, I was diagnosed with Type One Diabetes. I never wanted anyone to know that I was “different” from them so I only told my close friends.

Recently, I have realized that being different is a good thing. My diabetes makes me unique. I want to show people that this is just another thing that makes you “cool”.

I want to share my stories and journey with everyone. I am hoping this will make a difference in someones life that is just coming to terms with T1D.

This is a lifelong disease and we all have to stick together. With your help, we can make Type One, Type None.

IMG_3790_edited.jpg
I am Meghan Penske and I welcome you on my journey with T1D.

Beyond Type 1

Hey everyone!

Today I want to share with you an amazing app called Beyond Type 1. Beyond Type 1 is an app where type one diabetics can go and meet other diabetics. You can ask questions, tell them how your day is going and so much more. After having Beyond Type 1 for about two years now, I have met so many people.

They have different topics that you can follow and add your own posts to including Newly Diagnosed, Burnout, Troubleshooting Together, Sex, Drugs & Rock ‘n Roll, Stress & Support, Parents of T1D, Pregnant while T1D, Food, Physical Fitness, and Technology. You can join as little or as many topics as you would like. It is great to see the different viewpoints of so many people and to get so much help.

You will meet tons of people and some may live 5 minutes away from you. You never know! If you ever need anything, these members are always able to help you. We have all been in the time of need and we will get through it together.

Join me in Beyond Type 1. You’ll love it as much as I do.

Here is my link for you to join:

https://community.beyondtype1.org/share/ICAgNDYyMTQ0

BT1-HEADER-APP

 

My Diagnosis Story

      On April 2, 2012, when I was eight years old, I was diagnosed with Type One Diabetes. My mom picked me up early from school and told me we had to go to Stony Brook University hospital. I didn’t know why, but I heard the serious tone in her voice so I didn’t fight it. She explained that my doctor had found high levels of sugar in a test she had completed on me and that she was concerned for my health. When we got to the emergencymedPediatric Emergency Room, my mom told the woman at the desk that a doctor from the Pediatric Endocrinology Unit was awaiting our arrival. We sat in the waiting room for what seemed like forever. Then, they called my name. I went into a small room and sat in a chair. The nurse told me I was going to feel a pinch on my finger. “3…2…1…” she counted. I jumped, surprised by the pain. She had pricked my finger in order to get a blood sample. At the time, I didn’t know what that was. Little did I know that I would be pricking my finger to draw blood at least 6 times every day for the rest of my life.
      The night was very long. I was brought into another room and was placed in a bed. A male nurse came in and told me he was going to put an IV into my arm. He enthusiastically proclaimed, “This is going to help you grow!” I laughed as he stuck the needle in my arm. After a while, all the medical staff left the room. My mom was on her phone letting people know where she was if they needed her and my dad was texting my best friends dad. I was watching Disney Channel on the hospital TV that was extremely small. A man walked in a few minutes later. He shook my parents hands and my own. He told us his name was Dr. Wilson, then tried explaining what he thought was wrong with me. He said words that my eight year old brain didn’t understand. I realized he kept repeating “type one diabetes”. I didn’t know what that was exactly, yet I knew it probably wasn’t good if I was in the hospital.
      The doctor left and my dad called my best friend, Charlotte. My mom sat with me for awhile just holding my hand telling me that we would get through it all together. When my dad walked back in, my mom asked him to call my grandparents to let them know I indeed had diabetes. A little while later, a lady walked in. She was an educator and brought a stuffed animal bear with her to comfort me. His name was Rufus. I thought he was funny looking because he had different patches all around his fur in different colors. The woman explained to me that Rufus was a bear that had diabetes too. The patches on his fur were spots where I could get injections of insulin or prick myself to check my blood sugar. I loved Rufus because he made me feel like I wasn’t alone on this rollercoaster and that I wasn’t the only one with diabetes.
Over the years, I have had at least three doctors. I now go to Columbia Presbyterian Hospital in New York City where I see my endocrinologist, Dr. Leibel. The Naomi-Berrie Diabetes Center is considered one of the best in the area. It is only for diabetics and I feel as if they really understand what I go through every day. My doctor, who is really part of a team, is such a sweet lady with a kind heart. She looks at what I could improve on as a diabetic and what I have done well on. Although when I see her I miss a day of school, due to the long trip, I love going to Naomi-Berrie. It helps me to know that there are so many people just like me and that there are so many doctors who want to fight for a cure too.
After having T1D for six years now, I have become more comfortable with this disease. I have realized that there are so many other people going through what I go through everyday. I cannot remember my life without diabetes but I know that this is what makes me unique and I am proud to share my story.